CoRDS Assent Script
Children 7-17 Years of Age and Adults Unable to Consent
Protocol Title: Coordination of Rare Diseases at Sanford (CoRDS)
Investigator: Benjamin Forred
Department: Sanford Children's Health Research Center
2301 E. 60th Street N, Sioux Falls SD 57104
Phone: (877) 658-9192
Instructions for Parents and Legally Authorized Representatives: If the participant is between the ages of 7-17 or is an adult unable to consent, we ask that you read to them, or have them read, the following information before you enroll them in the CoRDS Registry. If your child/the participant does not agree to participate, you may not enroll them in the CoRDS Registry.
Approved by Sanford Health IRB: |
Approved by Sanford IRB 08-03-2017.
Approved by Sanford IRB 05-10-2019