Please answer a few questions to help us create your participant account.If you have any questions, please contact firstname.lastname@example.org or 1 (877) 658-9192.
Please provide your basic information.
Please provide your child’s basic information.
Please provide the participant’s basic information.
Red asterisk (*) indicates a required field.
Uncheck this box if you do not have a middle name
Legal Given name of the participant at birth(as per birth certificate).
DO NOT INCLUDE STATE or COUNTRY
As the participant's LAR, you will be our primary contact. Please provide your own information in this section.
As the participant's Parent/Guardian, you will be our primary contact. Please provide your own information in this section.
Use the arrows to add or remove the participant’s diagnosis from the “Selected Diseases” section. If you are not diagnosed with a rare disease, please search for Undiagnosed or Unaffected Carrier (along with a rare disease) if applicable to the participant. If you cannot find your disease search for Other and add your diagnosis.